Hi Everyone!  The Spina Bifida resource network has been such a valuable resource for us since Ella was born!  We've met other families affected by Spina Bifida, and gained knowledge and support to help Ella thrive.  This organization has also helped to educate staff members at Ella's school about how they can help Ella too!  Please consider donating.  Any amount is greatly appreciated!

-The Ziolkowski Family

Dear Friends,

We need your help more than ever! As you know, I’m participating in the Walk for Empowerment in Somerset, NJ on June 7^thto raise awareness about Spina Bifida and to raise funds for the nursing and family support coordination that the Spina Bifida Resource Network (SBRN) provides to children and families.

The State of NJ has eliminated all funding for the services SBRN provides to children under the age of 21. In spite of this setback, SBRN has continued to provide nurses and family support coordinators to families’ homes, school meetings, medical visits and hospital beds to provide assistance, training, advocacy, comfort and support as needed. SBRN is committed to continuing services to children with Spina Bifida, however, now they need our support even more.

I have been personally touched by Spina Bifida, and I hope that you will consider supporting my efforts to help SBRN and the children and families it serves. There are a few ways to do this:

• Make a donation to my page (any amount is gratefully appreciated).
• Ask your company if they would be willing to sponsor the event or to contribute an item to the tricky tray raffle.
• Share my page and efforts on your social media outlets.
• Join me at the Walk! It would mean a lot to me.

Making a donation is easy and secure- simply click the "Donate Now" button in the upper right to donate. Make sure to bookmark this page and come back often to check on my progress!

Thank you for your help and support!